July 28th update
Bennett’s appt. went well yesterday. He finished his last infusion of the immune globulin, she checked his levels yesterday and unless they were really low she thought she would stop the infusion. We didn’t get those levels before we left so we are unsure of how they were. He had the breathing treatment and he has 5 more months of continuing with that. She indicated that he could start weaning off the gabapentin pills that he takes twice a day that is supposed to help with the side effects from the chemo vincristine so he should be finished with taking those in about 2 weeks.
His Dr. indicated that we would need to continue checking his counts by CBC testing but she did not want the CMP which is the complete metabolic panel. She thought we would continue our monthly Dr. examinations for a year and than we would go every other month for six months and than continue to taper off. She asked how he felt not taking any chemo and Bennett indicated no changes and I would agree. We haven’t seen any energy changes yet and he felt so good the last few months that he feels the same.
The Dr. said that no she was not going to do a bone marrow biopsy. She said they only do that if they see any changes or reasons that would indicate that the leukemia was in the bone marrow, she does not except that with Bennett so no need to check! Really good news! Amen!
We’re so thankful for a good report and that Bennett is doing so well!