December 21st update
We thought Bennett was feeling better since yesterday was a good day. He did go to school today and took his final exams and also made up one from Friday. He went to basketball practice after school and had a headache. It was really bad after practice to where even light and noise bothered him.
When I got home from work, I gave him some pain medicine but it didn’t seem to really help.
His nurse today told us to drink a lot of water that he probably needs to be drinking more. She also indicated for us to check counts again on Wed. or Thurs. because they want to see what his liver levels are going to do. Since they were so high when they were checked last Thursday in the E.R., they need to be checked one week from than. He is supposed to go ahead and take his 9 methotrexate pills tomorrow and his daily 6mp pills.
He is always glad to have the steroids behind him as he took his last dose on Saturday. We also stopped the caffeine pills because he was only supposed to take them a few days after the spinal tap.
His nurse indicated today that it just looks like he is going to have a tough time with the spinal taps and the methotrexate chemo that is injected into his spine. I wished there was some relief but unless it gets so bad to be admitted to the hospital there is nothing else. One good thing is that he should only have 2 left in his treatment plan!!! He gets them every 3 months.
We pray that his headache goes away for good and he starts feeling better. It’s so miserable to have a migraine and not get any relief.
“As for God, his way is perfect; the word of the Lord is proven; He is a shield to all who trust in him.” Psalm 18:30