*2:30 p.m. We are all snuggled in to our home away from home. Bennett was thankful to get the same room we had before which gives him a DVD player so we can watch CSI together! Hope he is up to it.

His ANC dropped to 837 from 1,776 on Monday. His WBC is 2.7 from 4.8 and neutrophils are 31 from 37. Dr. is not concerned of the drop in his ANC. She believes it’s rebounding from the infection/fever he had last week, stopping neuopogen plus he has been on his chemo pills for 5 days. His hemoglobin was 11.7 from 12.3 and platelets 228 from 210 which is all good. All other metabolic panel blood tests were good too.

His oncology Dr. has decided not to get neurology involved at this time because after examining him he does not show the signs of having these symptoms. She was looking for eye and ear problems and balance walking or standing, all was good. She does want him admitted and observe him for 48 hours. She wants to observe his activity and what may cause his headache to come on or be worse. He doesn’t have it all the time, sometimes his pain is 0 and other times it is a 6, 8, or 10. We feel the activity doesn’t matter. The headache was horribly worse after he went to school but he has other days that he has been in bed all day and night and the headache still comes and goes.

Dr. does want the pain management Dr. to examine him again and see if there is any other suggestions and to revisit the possibility of a spinal tap headache. Oncology Dr. does not think he has the symptoms of a spinal tap headache though. I am of the opinion if there is any possibility that it is and it’s safe to do the blood patch to cure a spinal tap headache, than let’s do it and rule this type of headache out. We will see.

Dr. changed his continuous pain medicine to methadone from the oxycontin for every 12 hours still. She didn’t want him on that for very long; it is easier to tamper off on the methadone. He still can get the oxycodine every 4 hours if needed.

I questioned the oncology Dr. if she thought about doing a bone marrow biopsy to rule out the relapsing of his leukemia. She does not believe for any reason at this time that this is the problem. I was worried about the fatigue because this is one of the main symptoms he had before diagnosed. She indicated if his bone marrow was diseased that his hemoglobin and platelets would not be going up and staying in a good range. I do understand that so I questioned how long does leukemia have to be in your bone marrow before it completely attacks your hemoglobin and platelets and enter into your blood. She said it is pretty quick probably a couple weeks. And Bennett has been sick for about a month. So far now, this is all great news! My mind will never be rested/satisfied but the Dr.’s reassurance was badly needed. We will always continue praying this prayer.

Bennett was good about answering all of the Dr.’s and nurses questions, it was good to hear him talk that much. His headache pain has been an 8. He ate some muffins for breakfast and pizza for lunch. He is really tired and is trying to take a nap.