April 27th update
Bennett’s ANC was 1,776 from 1,742! Wow! We are so grateful and pleasantly surprised! His WBC was 4.8 from 6.7 and neutrophils were 37 from 26 from his last CBC 2 days ago. We pray that this holds and these high counts are not just from the neupogen medicine. We will check counts again on Monday before his monthly chemo appt on Tuesday.
Bennett does not feel well. He did not go to school. His headache has bothered him some but his biggest complaint is no energy and just feels awful. He never really got up today, he stayed in bed all day. He didn’t play any video games or anything extra.
I brought him home a blizzard tonight and he came in the kitchen and sat at the kitchen table for a few minutes, it wore him out and he had to go back to bed.
His back is bothering him too, he said it feels like someone is taking a knife and stabbing on both sides of his spine? I offered for him to go to the massage therapist today but he didn’t even feel up to that. He did let me rub it but didn’t help the pain go away. Hopefully tomorrow he will feel up to that.
I called the ENT clinic today to schedule a follow up appt, I was telling the ENT nurse of his issues, and asking if we cannot culture his sinuses and figure out what type of infection is to make sure he is on the right antibiotics. The ENT Dr. was in surgery and they are supposed to get back with me.
I spoke with his oncology nurse today as well. And was told that it’s just going to take awhile that his body has been through a lot. I am not coping well with this answer.
He did get up late tonight and took a shower which he hadn’t done since we had been home because of not feeling up to it.
I’m worried that Bennett still does not feel good. We are going on about 3 1/2 weeks of him being in bed more than he is out. This can be depressing and upsetting and I pray that he can stay strong through all of this, physically and mentally. We thank God for giving him such a fighting spirit!
I’m sure the daily things you all have to deal with is really exhausting. It always seems
we don’t get the answers quick enough or what we want to hear from the Dr’s. I so wish
were able to get up and feel like doing something. This weather is going to be bad for
awhile and that’s not good either.(for sinus or mood) So thanksful that his #’s whatever
they mean, have come up. I know it must be a good thing because you sound so positive
about that. Love you and check with you later. Julie
Stay focused on the positive counts today. Your strength and God’s love will take care of the rest. You’re in our daily prayers. Feel better soon!
We’re so greatful that Bennett’s counts stayed good but I just hate to hear he is still feeling so bad. I sure hope you get some answers and soon and he can get on the road to recovery even faster. It sure has been a good while and I am sure it is playing on both of your nerves, its aweful to not feel well and then to not be able to get any relief has good to be tough. But Bennett I know you are a fighter and you will get through this! Prayer to you all and please if there is anything at all you need or we can do, please do not hesitate, we are just a phone call away!
Hugssss!
Feel Better Soon Bennett!!!!!!
Roger, Tami & Abbie