*9:15 a.m. Bennett’s ANC is 220 from 540. This bothers me some that it is so low with the neuopogen. Last time he had neuopogen, it jumped up to the thousands pretty quick. He is going to get neuopogren again tonight. His WBC were still 2.00 with 11 neutrophils instead of 27. Hemoglobin went up to 8.9 from 8.4 and platelets are 123 from 114. This is good, at least his bone marrow is making these cells. We pray that it makes white blood cells soon.

Bennett had a fever at midnight of 101.3. They took blood cultures again and gave him tylenol. I’m concerned of what is causing the fever. The antibiotics so far isn’t killing the bug that’s causing it. He needs a higher ANC too to help fight it off.

Bennett slept pretty good last night. His pain late in the night was an 8. He complained of a throbbing pain on his left side of his head. His side was bothering him but hoping that was from sitting up in bed. Dr.’s are going to lower the pain med drip a little more today. It was 220 micrograms an hour and they changed it to 200 yesterday and today to 180. He still can use his button if needed.

*2:15 p.m. Bennett woke up around 11:00 a.m. He ate pancakes and cereal again. He really likes it. He took a sponge bath in bed and washed his hair. He had some chest pain while up blow drying his hair. He couldn’t lay back down fast enough.

He got the 500 mg of caffeine by iv at noon. So far he hasn’t given him that spunk (energy) that he has had the last few days after the caffeine.

Oncology Dr. does believe he has some type of infection because of the fever and the low ANC. Possibly from the drainage of the sinuses. They did a blood test for galactomannan which is a type of fungas. If it comes back positive, they will switch his antiobiotic.

Bennett is in pretty good spirits. He’s not ready to go home until he is feeling better. He is content putting together lego right now.

*6:30 p.m. Bennett’s temp was 100.0 at 4:30. He has started itching again so they gave him ataraks. He had personal pan pizza for dinner. His pain in his head is a 7 1/2. Dr.’s have decided to take him off the dilaudid pain drip because dilaudid can cause headaches? They are switching him to 10 mg oxycodine pain pills every four hours. We are going to try this and see if he can tolerate the pain and hopefully will relieve it if it’s a dilaudid headache. Dr. discussed the blood patch again if it is a spinal tap headache involved too but they are not comfortable with doing this because of his low anc and fever.

*9:30 p.m. Bennett had a cookie dough blizzard tonight for a snack. I think he has had one the last several days, he really likes them. He feels pretty spoiled, he loves his egg crate on his bed. He got a fan today and loves it to sleep with a fan at home. The little things like this really helps.

His temp at 8:30 was 99.1. We pray it doesn’t spike up anymore. His pain is around 8 right now. His head hurts all the time. His left side hurts when he stands up, not sure what this new pain is. His oxy is due again at 9:45 p.m. and he is ready for it. We pray he can continue with the oral pill and not have to go back on the drip.

We pray for a higher anc, no fevers, and his pain to go away. May God bless you all, our family and friends as we continue this journey together. Thanks for checking in, your comments, prayers, love, and support.