All Star Game

Wow! What a game! Today was the Jr. High All Star baseball game held in Marion. Our team (east team) included Benton, Carmi, Eldorado, Hamilton Co., Harrisburg, Johnston City, Marion, and Metropolis. We were down 2 to 4 and had last bats in the 9th inning. We came back and won 5 to 4!! Yeah!! The West team included Anna, Carterville, Centralia, Dupo, DuQuoin, Herrin, Mt. Vernon, Murphysboro, West Frankfort, and Wolf Branch.

Bennett managed to get on 1st base when the catcher dropped the ball on his 3rd strike. He ended up stranded though on 1st in the 1st inning. He batted one more time and had a hard hit to left field that was caught. It looked like it was going foul but stayed fair and the left fielder had a great catch. Bennett played right field for 3 innings and no-one hit it out there. The first part of the game was a pitcher’s dule and there were many strike outs in the game. Bennett and his fellow Benton players were so happy to be a part of it and represent our team and town. They enjoyed hanging out with other players that they are friends with and have played against for the last several years.

We are so proud of Bennett. His endurance, strength, and motivation sets a great example for all athletes and cancer patients. He is going to bed early tonight because he is going duck and goose hunting early in the morning in Shelbyville. He can’t wait! We go Monday morning to check his counts, we are praying that they have increased dramatically so he can get back to his full dose of chemo.

May God continue to bless Bennett #10!

Posted by Cindy on October 18th, 2008 in General, Inspiration, Updates | 4 Comments

October 17th update

Bennett is doing good and we are so thankful!  There have been so many times that I wondered if we were going to get through all of the unanswered things that was happening to his body.  His unexplained ankle that looked like his cancer had returned, his unexplained high fevers that looked like his cancer had returned, and his unexplained low counts that looked like his cancer had returned….  There is never a day that goes by that I don’t think about; what if it does?

Some of our close friends that we have met through all of this have relapsed and/or are having a tough time right now.  It sure breaks your heart and continuously reminds us that we should be thankful for Bennett’s good health today.  Though many days; it makes it hard for us to celebrate.

Time seems too fly by but when you look back and think about the time frame, it wasn’t just a few months ago that we were fearing for Bennett’s life with low blood counts, high fevers, cancer returning by having a bone marrow biopsy and his biopsy of his ankle.   This all happened from May till July.   His cold and low counts in Sept. made us think here we go again but we were thankful that he stayed out of the hospital.

It has been a long, tough 20 months but I can’t Thank God enough! I pray every night that God continues to bless and heal Bennett. I pray that Bennett’s journey has touched many lives by bringing you closer to God, helping you in choosing a positive attitude, value the true meaning of love, faith, & hope, value your health, value your children, value your children’s health, and to help you to just stop for a minute to give Thanks to God for all of your blessings and to really realize what/who really matters.

May God bless you and your family.

“Now may the God of hope fill you with all joy and peace in believing, that you may abound in hope by the power of the Holy Spirit.” Romans 15:13

Posted by Cindy on October 17th, 2008 in Updates | 2 Comments

October 15th update

Bennett is doing good.  He had basketball practice tonight and than he came home and studied for his spelling test.  He went to the Hitting Zone tonight. He usually is too tired but he wanted to go so he could practice hitting before the big All star baseball game this Saturday. Bennett has been lifting weights.  He thinks that he has lost some of the fat he had during baseball season.  Fat?  (Well he calls it that) He has been getting in shape more and has turned some of that into muscles.

Bennett has been fortunate enough to be invited to the sunshine kids national event to New Orleans leaving Wednesday for 5 days.  5 teenage boys from the oncology floor of St. Louis Children’s Hospital was invited to go.  Our friend Ryan from Paxton, IL learned about it and checked into them going.   Ryan is still in the hospital though with pain and still having problems with his intestines.  We pray that this clears up and that he will be able to go.  Ryan has had a real hard time spending more of this year in the hospital than at home.  May God heal his body.

“I considered all this in my heart, so that I could declare it all; that the righteous and the wise and their works are in the hand of God.” Ecclesiastes 9:1

Posted by Cindy on October 15th, 2008 in Updates | 0 Comments

October 14th update

Bennett is doing good.  He has had basketball practice almost everyday.  I was wanting to go watch him practice yesterday while I was off work and they had practice in the morning but Bennett didn’t want me too.  I think he was embarrassed.  I’m curious of how he is keeping up with the drills, shooting hoops and running down the court.  Basketball requires a lot more physical strength than what he is used too.  We pray that he can keep up, running up and down the court without getting too exhausted too soon.

We didn’t have counts done this week.  It seems weird not getting an update of where his numbers are.  Normally on the maintenance phase, you just get counts checked monthly but with Bennett’s unpredictable numbers we have been going weekly for several months.  The Dr. thought he was fine to wait until next week and I agreed.  It was nice for the boys to have a break because normally we go at 7:00 a.m. before school to get them checked so they were glad to be able to sleep in a little longer.

We will check counts on Monday next week. On Tuesday, Bennett has a Dr. appt in St. Louis for a spinal tap with chemo injected into his spine, iv push of vincristine, and his monthly breathing treatment.  He will start steroids again next week.  Currently he still is taking 1/2 of his chemo dosage.

Thank you for checking in.  Please keep praying for a cure for cancer; no person or child should have to endure all the pain and suffering this horrible disease and the treatments brings.

Posted by Cindy on October 14th, 2008 in Updates | 0 Comments

Hope, Love, and Faith

Our friend Brittani tonight married her high-school sweetheart. Actually they were in 8th grade when they started dating. During Brittani’s freshman year, she was diagnosed with a very rare cancer, Ewing sarcoma. She went through treatments at the hospital in Texas. She was chosen for a clinical study of a new drug which ended up causing problems with her lungs. She had her lung transplant last summer and stayed at the Ronald McDonald House in St. Louis for 3 months. She came home at the end of August and finished her senior year.

The Dr.’s have told her recently that she needs another lung transplant. She has a rare disease in her lungs that makes it difficult for her to breathe. It took everything that she had tonight to walk down the aisle, stand during the ceremony and dance with her dad and new husband!

As the best man and maid of honor gave their toasts to the bride and groom. They spoke of how Brittani and Gavin’s love and relationship has been a true inspiration to everyone. They have gone through together at an early age what most couple’s will never have to go through. They have set the example with their unbelievable hope, love and faith.

Please pray that they have many years together. God has healed Brittani several times in the past and may he perform another miracle!

Bennett & Brittani May 2007

What a miracle and blessing from God!

Posted by Cindy on October 12th, 2008 in Inspiration, Updates | 1 Comments

Straight to None to Curly!

Below is a picture of Bennett in the hospital when he was diagnosed in February 2007. And a pic of him bald ( I don’t have many pictures of him not having a hat on). Also, a quick snapshot of the back of his hair from this evening. Many of you have asked, Was Bennett’s hair this curly before? Sid thinks Bennett got his curly hair from him. His hair became curly when he was in high-school but it was red. Bennett’s thankful that he isn’t a red head. LOL! I think he does like it curly though. Hamilton’s hair when it is longer in the back had baby curls. Bennett always liked Hamilton’s curls when he was younger.

Bennett is really just happy to have hair. Some cancer patients when their hair grows back it’s just curly. I don’t think he really cares if it’s brown or blonde or straight or curly. Isn’t it funny how hair can change the looks of someone? As I was looking through pictures of Bennett during his intense treatment; it continues to keep us thankful for the gift of life and the small things, like hair. You know though, when someone doesn’t have any hair, you tend to look at them and wonder what’s wrong with them? Do they have cancer? So, hair means to us, that Bennett is healthy! Thank you God for Bennett’s beautiful hair and keeping him in remission forever!

Posted by Cindy on October 11th, 2008 in Updates | 1 Comments

October 9th update

Bennett is doing good.  Boy, do we like the sound of that!  Especially since he has been feeling well consistently the last few weeks.  We pray this winter isn’t a bad flu season.  I remember last year when he was diagnosed that it was so hard to determine something was really wrong because he had flu like symptoms and the flu bug was terrible that year.  Many kids were sick and would get well for a week or two and than pass it around getting sick again. I’m going to ask his Dr. if he is able to get a flu shot.  So far, he hasn’t been able because of all the chemo and low counts.

Bennett had some exciting news tonight!  His coach called and said that Bennett made the southern Illinois All Star baseball team!   Two other players from the team were chosen too and will play on the All Star team in Marion on October 18th.  This is a joyous time for him!  We give so much thanks to God for carrying Bennett through.  We are so amazed that he can play sports while being on chemo and having low counts.  I can’t wait to see what kind of athlete he will be without chemo in his way!    What a day of victory that will be!

“It is good to sing praises to our God; for it is pleasant, and praise is beautiful.” Psalm 147:1

Posted by Cindy on October 9th, 2008 in Updates | 6 Comments

Childhood Cancer Facts

  • Childhood cancers are the #1 disease killer of children and 2nd overall killer in children behind car accidents.  — more than asthma, cystic fibrosis, diabetes, and pediatric AIDS combined.
  • One in every 330 children will develop cancer before the age of 19.
  • The National Cancer Institute’s (NCI) federal budget was $4.6 billion. Of that, breast cancer received 12%, prostate cancer received 7%, and all 12 major groups of pediatric cancers combined received less than 3%.
  • Childhood cancer is not a single disease, but rather many different types that fall into 12 major categories. Common adult cancers are extremely rare in children, yet many cancers are almost exclusively found in children.
  • One out of every five children diagnosed with cancer dies.
  • Common cancer symptoms in children — fever, swollen glands, anemia, bruises and infection — are often suspected to be, and at the early stages are treated as, other childhood illnesses.
  • Three out of every five children diagnosed with cancer suffer from long-term or late onset side effects.
  • Childhood Cancers are cancers that primarily affect children, teens, and young adults. When cancer strikes children and young adults it affects them differently than it would an adult.
  • Cancer in childhood occurs regularly, randomly, and spares no ethnic group, socioeconomic class, or geographic region.
  • The cause of most childhood cancers are unknown and at present, cannot be prevented. (Most adult cancers result from lifestyle factors such as smoking, diet, occupation, and other exposure to cancer-causing agents).
  • Nationally, childhood cancer is 20 times more prevalent than pediatric AIDS yet pediatric AIDS receives four times the funding that childhood cancer receives.
  • On the average, 12,500 children and adolescents in the U.S. are diagnosed with cancer each year.
  • On the average, one in every four elementary schools has a child with cancer.
  • On the average, every high school in America has two students who are a current or former cancer patient.
  • In the U.S., about 46 children and adolescents are diagnosed with cancer every single school day. That’s about the equivalent of two entire classrooms.
  • While the cancer death rate has dropped more dramatically for children than for any other age group, 2,300 children and teenagers will die each year from cancer.
  • Today, up to 75% of the children with cancer can be cured, yet, some forms of childhood cancers have proven so resistant to treatment that, in spite of research, a cure is illusive.
  • Several childhood cancers continue to have a very poor prognosis, including: brain stem tumors, metastatic sarcomas, relapsed acute lymphoblastic leukemia, and relapsed non-Hodgkin’s lymphoma.
  • So, now you’re saying, “Wow! That’s absolutely ridiculous … what can I do to HELP???” (right?) :)


    Here are some things you can do:

  • join team unite to become part of a unified voice against childhood cancer
  • join people against childhood cancer (PAC2) to learn of efforts being made around the world to find a cure, raise awareness, and lend support
  • tell everyone you know (and even those you don’t know) how you, or someone you love, has been touched by childhood cancer
  • donate blood
  • register to become a bone marrow donor
  • let a family that’s been touched by childhood cancer know you still care and haven’t forgotten about their struggles … let a family of an angel know their child remains in your heart
  • sign the CURE CHILDHOOD CANCER petition (and ask your friends and family to sign, as well!)
  • read this article on Forbes.com
  • See there? That’s a LOT of stuff you can do and most of it only requires a bit of time and love.
  • Thanks to Teresa for posting this on angel Jessica’s site for everyone to see and use.
  • Posted by Cindy on October 8th, 2008 in General | 0 Comments

    October 7th update

    Bennett is doing good. He was tired after school and took a nap for couple hours probably because he had been up since 5:30 a.m. and was at basketball tryouts at 6:15 a.m.  There were 13 8th graders that tried out and everyone made the team.  Bennett is looking forward to playing and hope he can.    Basketball practice starts tomorrow after school.

    His Dr. wants him to continue the dosage of chemo that he has been taking the last two weeks at 50% less.  In two weeks, she wants us to check counts again which will actually be time  for his appt in St. Louis.  She will than decide if she wants to increase it.  She felt like we needed to keep with the 50% less since his ANC was just at 1,000.  He took 6 methotrexate pills tonight and takes one 6mp pill daily.

    Thank you for checking in and your showers of prayers!

    Posted by Cindy on October 7th, 2008 in Updates | 1 Comments

    October 6th update

    Bennett’s ANC today is 1,092 from 1,045.  We were pleasantly surprised that it didn’t drop since last week’s numbers should of been elevated because of the steroids he was on.  His WBC were 2.1 from 1.9 and neutrophils were 55 from 52.  He is taking 1/2 the chemo pills for the last two weeks so hopefully that is helping his counts stay more stable.

    His hemoglobin is 11.6 from 10.2 and platelets are 154 from 106. It’s always encouraging when these go up because it means that his bone marrow is making new cells.

    I’m waiting to hear from his Dr. in St. Louis to see if she wants to increase his chemo or leave it with him only taking 1/2 of his dose.  We had his liver and kidney functions checked today too and they seemed good.

    Bennett is already in bed.  He had basketball try outs after school today and they continue in the morning at 6:15 a.m.  Bennett said he was out of shape after today’s tryouts. The running is probably the hardest for him.  He has improved since this summer though on his speed and mobility but still not where he would like it to be.

    “Though now you do not see him, yet believing, you rejoice with joy inexpressible and full of glory.” 1 Peter 1:8

    Posted by Cindy on October 6th, 2008 in Updates | 0 Comments

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