October 21st update
Bennett is doing pretty good. His temperature today has been normal. We were at the hospital most of the day. He was able to be sedated and had his spinal tap with methotrexate injected into his spine. Bennett says that his lower back where he had the procedure is hurting. He took some tylenol and it didn’t help so I gave him some pain medicine.
His Dr. thought his nose, ears, throat and lungs looked/sounded good. No signs of infection! He finished his last dose of the antibiotic tonight. The Dr. increased his chemo just a little today because it goes by body weight. He still is on the 50% less dose until we see what his counts are going to do. Today though he weighed 124 which is about 6 pounds less than last month. The Dr. wanted to go ahead and go by last month’s weight because she thinks he will gain that back soon. Bennett told her it’s because he is in shape now. He hasn’t ate as much though the last few days.
He also got an iv push of vincristine chemo and the breathing treatment to prevent pneumonia. His Dr. wants us to check counts weekly. He starts 10 steroid pills for the next 5 days. He will also take pepcid which seems to keep heartburn away.
We had a nice visit today with our friend Ryan. That boy is something, he had asked his Dad to make Bennett a snack bag so he could take on the trip. Here, Ryan can’t eat and can’t go on the trip and he wants to make sure Bennett has snacks! We’re sorry Ryan you can’t go this time; we’re looking forward to the day when you two can hang out!
Bennett feels better and is ready to fly to New Orleans. We meet at the STL airport at 11 and they fly out at 1. 3 other boys are going plus a nurse and doctor from St Louis. There are 28 other kids from the U.S. The Sunshine kids is sponsoring the trip, they are headquartered out of Texas and California. We are thankful that Bennett is able to go and pray that he stays healthy and has a safe trip!
YEA! Happy to hear that Bennett is going to make the trip.
There ain’t much fun in medicine, but there’s a heck of a lot of medicine in fun.
- Josh Billings, 19th Century Humorist