September 23rd update
Bennett’s appt went well. He saw his main oncology Dr. and she thought he looked Awesome! He had many compliments about his curly long hair. The Dr. couldn’t hear any congestion in his chest. He got an iv push of the chemo vincristine today. He also had the pentamidine treatment that prevents pneumonia.
He weighed ……… drum roll please ……………………… 133 ! He weighs 6 more pounds from last month. The Dr. was very pleased with his weight stating you are finally feeling better. This is the most he has every weighed. I’ll never forget the times when he weighed only 101 during his treatments. Bennett says it’s all muscle!
The Dr. checked his immunoglobin levels today. He had these checked when he was in the hospital in May and in July and they were really low and he received an infusion of immune globin. His IGG level was low at 429 but his Dr. didn’t want to do an infusion. Normal range is 600 to 1,500. His level was 378 in July. The immunoglobin is part of the B cell that helps you to fight off infection. She wanted it check since his counts had been dropping and he has been sick.
The Dr. decreased his chemo pills by 50% for the next two weeks because of his ANC bouncing around. He took 6 methotrexate pills today instead of 13 which he takes weekly on Tuesday’s. He will take one 6mp pill nightly instead of two through the week and 1 1/2 on the weekend instead of three. She hopes to increase it gradually in the next couple weeks if his counts improve. He started steroids today for the next five days too.
Thank you for all your prayers and support. We are feeling more positive and confident after making it through very low counts and his bug the last two weeks.
I am so glad for the good news on Bennett. 133 pounds - that is wonderful. Keep up the good work, Bennett. Thanks again, Cindy, for keeping all of us informed. I am sure, like me, there are a lot of people checking this website daily. God Bless