May 27th update
Bennett had a good day. We left earlier and met one of our favorite nurses from the hospital at Forest Park and walked around/visited for about 45 minutes. Our clinic visit was rather long today. He saw the Dr. and she thought he was doing good. She was concerned about his ankle. When she touched it, he said it really was sore but he didn’t complain about it hurting while we walked around at Forest Park. We went and had x-rays of his ankle/foot and waited for the results. He has fluid built up around his ankle probably turning or landing on it funny. She told him to wear a brace and keep it elevated as much as possible.
The Dr. did a physical exam and thought he needed improvement in his ability to balance and walk a straight line after I filled her in on his few falling episodes. She did indicate that she thought he did okay since he was just now building back his strength but she wanted to see him improve next time if possible.
I asked her about his lower ANC and she indicated that it’s probably just taking some time since he had a really bad infection. I told her I was concerned since he hasn’t had any chemo for a month and his numbers are hanging around the lower end. She wanted to go ahead and start chemo treatment as they don’t like to wait too long without some fight against any hiding cancer cells. She does want us to have a CBC test weekly at our local hospital so she can keep an eye on his counts. This makes me feel better. She also wasn’t worried about his creatinine level, potassium, or calcium. She suggested drinking lots of water, eating banana’s and drinking milk and we would check these levels again in a month.
Besides the iv push of vincrisine today, he also started steroids which are 4 pills twice a day for the next five days. He also took two 6mp pills tonight and 13 methotrexate pills. I told the Dr. I was concerned about the methotrexate and felt like it was the cause of his skin irritation/sunburn from being so bad. His legs are much better but sometimes have a pinkish tint to them so I don’t think they are 100% healed. I took a picture of his legs/arms tonight before he took the methotrexate and will keep a close eye on his skin.
We made it back into town just in time for Bennett to go straight to baseball practice. He took it easy on his ankle and didn’t run any. He is icing it tonight and he said it already feels some better or just numb.
We are praying that as Bennett continues through his maintenance phase that it is uneventful and he stays healthy.
“You are of God, little children, and have overcome them, because He who is in you is greater than he who is in the world.” 1 John 4:4