11:30 am Bennett’s ANC today is 475 from 540 from Saturday. Not the right direction we wanted it to go. He is back in the severe stage with a very low ANC. His WBC are 1.9 and neutrophils are 24. Hemoglobin is 10.1 and platelets are 115 which are good. His creatinine level is really high at 1.5. Normal range is 0.2 – 1.2. This is what controls your kidneys. They are giving him an extra bolus of 500 ml of fluid because of the creatinine being high; he already had 500 ml. He has been pre-medicated with tylenol, benadryl, and demerol. He will get the ampho over 2 hours and than will receive another bolus afterwards. Bennett slept on the way here and as soon as we got in a room, he went to sleep. He weighed 116 today and temp was normal. He doesn’t need to lose anymore weight, he has lost 9 pounds.

*3:45 pm Bennett is about done with his last bolus of iv fluids. The Dr. in the clinic thought today should be his last dose of ampho. She is concerned because his creatinine is so high so she is ordering for him to have iv fluids over 12 hours at home for 3 days. The home health nurse will come each night and than I will unhook him. He will stay accessed so he can get the fluids. On Thursday, they will check his creatinine level, also a CBC test and we will go from there.

*9:30 pm Bennett is pretty tired. He did stay awake on the way home but didn’t say much.  He hadn’t wanted anything to eat all day, when we got home he finally ate a few bites.  All the nurses in the clinic plus the home health  nurse that came tonight have all said that  the amphotericin drug is horrible,  very strong.  We are praying that his creatinine level goes down and that his kidney’s are not damaged. We are praying for his ANC to get closer to a normal range.  It’s always concerning when his bone marrow isn’t make WBC very fast.

‘”Let us also lay aside every encumbrance and the sin which so easily entangles us, and let us run with endurance the race that is set before us.” Hebrews 12:1