December 31st update

"He is your praise; he is your God, who performed for you those
great and awesome wonders you saw with your own eyes." Deuteronomy 10:21

Praise God! We all are thanking and praising the heavenly father; The Almighty! Bennett’s ANC today was 874! WOW! Yes!; From 319 on Friday and in 3 days it raised up to over the dangerous level of 500! This was a long hard rode for us around the holidays. We understand that it could of been worse and we are thanking God that it wasn’t. But your mind can’t help wondering and the devil plays on that too where I was getting scared. Very scared.

His hemoglobin is up to at 11.5, Yeah! Normal range is 12.5-16.1. Hemoglobin controls your oxygen level which when it is higher, it helps him to breathe and be more active. Platelets were at 393! Very good!

Since his ANC is over 750, his primary Dr. wants to do his treatment this Wednesday. He will have a spinal tap with methotrexate injected into his spine and he will also have a dose of methotrexate and vincristine administered through his port.

He will not be able to go to school until his ANC is over 1,000. An ANC between 500 to 1,000 is a slight chance of infection and can become severe.

Bennett went to a friends house tonight to celebrate the New Year! We are so happy, this is the first time he has been out of the house with a friend for 3 or more weeks.

We appreciate everyone’s prayers, love and support! We know God hears us, loves us and will heal Bennett!

Happy 2008, it’s going to be Great!

“Sing to him, sing praise to him; tell of all his wonderful acts. Glory in his holy name; let the hearts of those who seek the Lord rejoice. Look to the Lord and his strength; seek his face always. Remember the wonders he has done, his miracles, and the judgments he pronounced.” 1 Chronicles 16:9-12

Posted by Cindy on December 31st, 2007 in Updates | 6 Comments

New Years Eve

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Here are a couple of pics of Bennett and his friends on New Years Eve -celebrating the New Year of 2001 & 2003!

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6 years old and 8 years old

Below is Bennett and Hamilton last year on New Year’s Eve with their friends – One year ago today – Boy has our life changed, you never know! Make the most of each day!

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Posted by Cindy on December 31st, 2007 in General | 1 Comments

December 30th update

Nothing is really new or has changed with Bennett. He is still pretty tired and can’t go out in public places because of his dangerously low ANC. I was pleased that yesterday he felt good enough to ride out in the country with Sid and Hamilton. And than that afternoon he played football in the yard with Hamilton. I love these days that he feels like getting out of bed and moving around some.

He is eating a little. Not as much as he used to but he does normally eat three meals a day and snacks in-between. He just eats small quantities.

Bennett and I went to Grandpa/ma J’s this afternoon. We saw 8 or 9 deer on the way there. When we got home we made chocolate cupcakes. Bennett is eating some now with chocolate milk. He had to try his cucumbers and vinegar first that he made.

We go in the morning for a CBC test at our local hospital. We pray and have faith in God that his ANC will be higher. Thanks for checking in on Bennett and we hope to have good news tomorrow!

"If you can?" said Jesus." "Everything is possible for him who believes."  Mark 9:23
Posted by Cindy on December 30th, 2007 in Updates | 1 Comments

December 28th update

We went to SLCH outpatient lab for Bennett’s CBC test and his ANC is down from 319 to 228 which is disappointing. Hemoglobin and platelets are good at 9.7 and 250. I am starting to wonder of why his bone marrow is making white blood cells. His nurse wants him to go Monday for another CBC at our local hospital to see if his counts maybe coming up and we will decide from there. She thought that his primary oncologist Dr. might want to see him on Wednesday. His ANC has to be at 750 to continue chemotherapy. His last treatment was 14 days ago. He has been delayed 2 weeks. We don’t like waiting and that he is not receiving any chemotherapy.

It broke my heart today in the lab, we were waiting for Bennett’s test and a little girl stood right in front of Bennett staring at him for several minutes. As she walking she still kept staring. Bennett became pretty aggravated and said she thinks I am a monster. I told him if he would take off his hoody she wouldn’t think that, never mind that he was wearing a mask. He is so conscious about wearing a mask and it doesn’t help when people stare at him. The parents didn’t even notice and the girl was too young to understand but it doesn’t make it any easier for Bennett. This happens regularly to him unfortunately.

We are thanking God for no fevers. We enjoy being home so much more than being in the hospital. We love the nurses but the walls and curtains start closing in after a day or so.

We had Awesome news today about our dear friend Ethan that is 4 years old, His bone marrow test was clear this time! Amen! We LOVE good news and praise God!

“Although our believing will get results, we must have patience, faith and perseverance. This is why King David said, “Submit thy way unto the Lord, trust also in Him and He shall bring it to pass”. (Psalms 37:5)

Posted by Cindy on December 28th, 2007 in Updates | 2 Comments

December 27th update

Bennett was really tired this morning and slept until around 11 or so. He took a nap last night and than ended up staying up until around midnight playing his xbox. He asked me to watch him play, those games are pretty cool. It seems he has been tired lately and not as much energy for him.

He wanted to get a few things from Walmart so we went but he wore a mask and avoided people as much as possible. We got subway to go for lunch. When we got home, he cleaned his room, WOW! He got rid of the clutter and organized it.

We will be going to St Louis in the morning for a blood test to check his counts. We are praying that his counts will be better.

Our hearts are heavy and are praying for a cure for all the children with cancer.  Some of our friends that we have met at SLCH are going through a tough time.   They have become a part of our family and help us cope with this horrible disease.

“Let all that you do be done with love.” 1 Corinthians 16:14

Posted by Cindy on December 27th, 2007 in Updates | 2 Comments

December 26th update

We had a very nice and quite Christmas.  The boys enjoyed staying home and playing with their things.  Gpa/ma Page came over for lunch and Gpa/ma Johnston came over  for dinner. We enjoyed all of the traditional Christmas food. Sid was busy in the kitchen most of the morning.

Today, we went for a blood test at our local hospital.  Bennett’s ANC is now 319.  We thought it might be higher.  He’s ANC is still dangerously low.   His hemoglogin is 9.7 and platelets were 207 which is up from Saturday.  We will go Friday for another blood test at St Louis, we want them to check it and make sure the numbers are correct.

Because of his low ANC, he will not have treatment tomorrow now.  Bennett has been pretty tired.  He did play xbox today and worked on his ipod.  I have asked him about having a friend over and he doesn’t want to just yet.

We are thankful that we were home for Christmas and not in the hospital.  We are thankful that Bennett hasn’t had any more fevers.  Please continue to pray for Bennett’s healing.

“Be imitators of God as dear children. And walk in love.” Ephesians 5: 1-2

Posted by Cindy on December 26th, 2007 in Updates | Comments Off on December 26th update

Merry Christmas

 

from the Page’s!

 

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Posted by Cindy on December 25th, 2007 in General | 1 Comments

A Letter to Santa

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In tonight’s Benton Evening News paper were letters to Santa from area kids. This one touched my heart. Many letters to Santa mention toys but this one sets the example of love and friendship. WE love you Peyton!

Dear Santa Claus,

Hi how are you this year. I hope you are good. Santa I have a wish. I would love you to grant it. It is not for me it is for Benet Page. My wish is for you to cure him of his disease. Thanks for all your help. Benet Page is one of my friends. I realy want this to happen. Have a great Christmas and a Happy New Year.

One of your friends from Benton, Illinois,

Peyton Smith, 4th grade

Posted by Cindy on December 24th, 2007 in General | 4 Comments

Christmas Eve

 Bennett as Santa at age 3 and age 4.  Ho! Ho! Ho!

Merry Christmas Eve! 

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Bennett is doing pretty good.  He is a little blue and on the grouchy side. I know he wishes things could be different for him at times like these but he won’t admit it if asked.

Bennett did go with Hamilton and I to run a few errands.  We went to Mackie’s in Marion and picked up a pizza to go.  We really enjoyed the sunshine!  I was glad he agreed to go and not stay home.  He had a headache earlier and hopefully this will go away.  He wouldn’t even play “Sorry” with me.  We are so thankful that he hasn’t ran a fever or anything else that would send us straight to SLCH.

Bennett and Sid went on a golf cart ride just to get out of the house and something different to do while enjoying the fresh air.

We will be staying home tomorrow instead of going to my parents and being with my side of the family.  We just can’t chance Bennett getting sick since his counts were in the dangerous stage.

Thanks to everyone’s Christmas cards, thoughts and prayers. Your friendship and love is a blessing and a gift to us!

away-in-the-manger.jpg  “When the angels had left them and gone into heaven, the shepherds said to one another, “Let’s go to Bethlehem and see this thing that has happened, which the Lord told us about.”

“So they hurried off and found Mary and Joseph, and the baby, who was lying in the manger. When they had seen him, they spread the word concerning what had been told them about this child, and all who heard it were amazed at what the shepherds said to them.”

“But Mary treasured up all these things and pondered them in her heart. The shepherds returned, glorifying and praising God for all the things they had heard and seen, which were just as they had been told.”   Luke 2 15-20

Posted by Cindy on December 24th, 2007 in General | Comments Off on Christmas Eve

December 23rd update

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Bennett and Hamilton – Christmas 2002 & 2004

Bennett is doing pretty good. He has been tired. He was still asleep when Hamilton and I got home from Sunday school. Hamilton wanted to go to Sunday school this morning because they were having a birthday party, a birthday party for Jesus!

Bennett has been kinda of bored, I think. He has been in his room most of the day. He did ride with Sid to grocery store today. Of course he had to stay in the car when Sid went in.

I think it is hard for him not to be able to go anywhere. No Christmas parties, to the movies, or mall. We had plans to go to Chuckie Cheeses and glow in the dark miniature golf last Friday. We usually try to do some fun things while the boys are on Christmas break. It becomes frustrating and tiresome after awhile But it is so much better than the alternative. He could be in the hospital so we are so thankful of being home.

Thank you for all your prayers and Christmas greetings!

“But the angel said to her, “Do not be afraid, Mary you have found favor with God. You will be with child and give birth to a son, and you are to give him the name Jesus. ” Luke 1:30-31

Posted by Cindy on December 23rd, 2007 in Updates | 7 Comments

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